February 14, 2023
Scientists Map Genetic Evolution of Chronic Lymphocytic Leukemia to Richter's Syndrome
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Wendy Ramsey Research Fund
in partnership with
Richter's Syndrome (RS), also known as Richter's Transformation, is a rare complication of Chronic Lymphocytic Leukemia (CLL) and/or Small Lymphocytic Lymphoma (SLL). It is characterized by the sudden transformation of the CLL/SLL into a significantly more aggressive form of large B-cell lymphoma. (affects 2%-10% of CLL/SLL patients)
Currently, the life expectancy after a diagnosis of RS is 12 months or less; however, there is hope being provided through the Dana-Farber Cancer Institute and specifically the research of Dr. Matthew S. Davids.
On Tuesday, May 11, 2021, Wendy Lee Ramsey, a loving and devoted wife to Duane Ramsey, mother of Spencer and Stewart Ramsey, a doting grandmother of Maxwell, Royce, and Otis, passed away at age 65 after an 18 year battle with CLL and ultimately succumbed to Richter's Syndrome.
The Wendy Ramsey Richter's Research Fund raises awareness and funds to provide unrestricted money to Dr. Davids at Dana-Farber Cancer Institute in Boston, Massachusetts. Dana-Farber is helping lead the way in Richter's research.
The Ramsey family is hoping to provide Dr. Davids with at least a million dollars of unrestricted research funds. Any donation of any size is welcome and appreciated - every penny counts.
In addition to raising funds for Richter's Syndrome, we hope this website can act as a resource center for Richter's patients and their families living with their new reality.
Historically, there has been little research and publication specific to Richter's Syndrome - often leaving patients and their families at a loss of where or who to turn to next.
We encourage all patients and family or friends to become advocates either for themselves or their loved one - researching and relationship building allows for access to more possible treatment options.
In the section below you will find some limited information and links to resources related to CLL and Richter's Syndrome. We encourage patients to join and engage in online forums, getting in touch with Dr. Davids and his team directly, and if you feel so inclined, we'd love to honor your loved ones here on this site.
Learn MorePlease feel free to submit a story and picture of your loved one that had Richter's Syndrome. We are looking to honor those who have passed due to this awful disease. We will post your loved one's image and short bio in memoriam to this site.
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